Now, please, of course, forgive misspellings. She is only learning to write and spell words and put sentences together on her own. But for her to have put a sentence like this together - unprompted - speaks to the soul of every person out there living with T1D.
We test blood sugar levels - many times a day.
We count carbs - ALL OF THEM - all day, every day.
We are thankful for the technology we currently have to treat T1D
We are anxious for better technology to make life even better!
We change CGM (continuous blood glucose monitor) sites - once a week.
We change insulin pump sites - every two to three days (less if there is a problem with the site).
We order and organize our diabetes supplies - yep, it fills an entire shelf!
We spend many sleepless nights trying to regulate BG levels.
We have also spent sleepless nights worrying about the unthinkable.
We carry a bag of supplies everywhere we go - everywhere!
...and you know what? This list barely scratches the surface of what it is like to live with T1D.
It is a lot for a 7-year-old.
It was a lot for a 3-year-old but at that time I think it was a little easier to deal with for her. Because I truly believe it was easier because she didn't know any different and she believed us when we told her everything was OK. Now that she is 7 and can make some of those judgments for herself, she is most certainly realizing that she drew the short straw and that is heart-breaking for any parent. That being said, she is the strongest, bravest, and most positive person I think I have ever met. I admire her spirit and her determination to live her life to the fullest regardless of diabetes. She is amazing and I am proud of her.
So, perhaps, to have a moment of reflection and wish that diabetes was never... I get it. I wish it never too. But she keeps on keepin' on and I will too because that is what we do. HOPE.