I have a particular concern about how it impacts her twin sister. We really do our best to lead a "normal" life but the bottom line is that T1D is a member of our family. It eats with us, it sleeps with us, it vacations with us... you get the picture.
We have gone out of our way to make decisions about food, or any decision really, about parenting and not about T1D (as much as possible). And on those occasions when it wasn't possible, we have covered our tracks the best we could. We have made changes to our overall household lifestyle rather than singling out our special D-girl.
And all seemed well on the home-front since her diagnosis (age 3) until now but every once in a while we get a comment from her sister like, "why does everything have to be about diabetes." Wow! Where did that come from?? I suppose it was only a matter of time, she has been a very good sport and a very supportive sister so far. And still is, although, we have to realize that it does and will affect her life as the SIBLING of a child living with type 1 diabetes.
We don't feel that we "fuss" over diabetes or pay undue attention for the sake of paying attention. We try to be fair.
But we are advocates. We are fundraisers. So, in that respect, we spend time on diabetes. And in talking with her sister, she agrees that we should do this - and never give it up - because she too wishes for a cure.
The act of changing out insulin pump sites and CGM sites requires our time and attention as well.
You know, I think, I just feel a little trapped between a rock and a hard place. I suppose the bottom line is diabetes is just a drag and there isn't a good way to deal with it sometimes. We do our best and that is all we can do. So, we stay positive and keep on keepin' on!