As previously mentioned, we have moved on from our first pediatric endocrinologist and have found a doc that is very attentive to our needs - both physically and emotionally. But one phrase that I remember hearing from a nurse at our first Peds Endo was "managing blood glucose levels is more art than science" and you know, I can't think of a better way to say it.
After obsessing over blood glucose (BG) levels for four years and trying to retain tight BG control, it really does ring true that there is an element of "art" to managing these levels. You can do everything right and end up with some pretty awful numbers sometimes and yet other times you can take a wild guess at the carbs for meal/snack/drink while eating out and end up right on target.
We are going to make mistakes and we have to learn to do our best and forgive what we can. Strive for tight BG control, but allow for those moments or even days when we just seem to have no control over those numbers. As a parent, it is very difficult to do because we worry about what the long-term complications from those high or low numbers might be and that is a concern not to be ignored. But I truly believe that if we are being responsible and maintaining a respectable hbA1c, then we need to recognize and remember that those BG numbers are not ALWAYS a direct result of our actions. So many factors are at play - hormones, stress, illness, exercise, the elements (excessive heat), etc.
We, as parents, always shoulder so much responsibility. And we are continuously learning. If only there were a "right and wrong" answer when it comes to type 1 diabetes. There rarely is, only educated guesses based on experience. And every person with T1D is different, and they react differently to different foods, stimuli, insulin dosages, etc. There just is not a "right or wrong" answer. How we wish there could be... it would certainly allow for a little more science and a little less art in what we do every day.
Maybe someday...but for now we will still be thankful for the technology we do have to treat T1D and wait on the edge of our seats for the exciting new technology that is to come that will make life for our kids a little safer and a little easier.