This past weekend was our local Relay For Life event (for the American Cancer Society). We participate each year because my mom is a cancer survivor as well as other family members. We LOVE the event and strongly encourage anyone to get involved if you can in your local community (www.relayforlife.org)
This was the first year that I felt comfortable enough to have my husband drop the girls off at the event and he could go back to work. I stay the full 24-hours (and then some - I have always served on the planning committee and had even previously chaired our local event). So, in the past I was reluctant to also have the kids on-site without my husband there to take responsibility for them because I had other commitments day of event but this year was different. They were old enough and I had enough time to spend with them and I really enjoyed the experience!
But, of course, our old pal - Type 1 Diabetes felt the need to tag along and play a part in the festivities.
The girls were actually planning to stay overnight with me. Yeah, a little young. But they had some serious fun and they had some friends there and they are some hard-core tough girls so I knew they could handle it... and then...
This is a view of how our evening and night went.
LOW! LOW! LOW!
No matter what I did, I could not get that darn blood sugar up!!! GRRRRR!!!!
Drasticly decreased temp basal rates, glucose tablets, food... nothing. I mean, what the heck?!
And, of course, meanwhile, there are people everywhere having fun and goofing off and the DJ is doing his thing. I am trying to put my Type Awesome to sleep a few tents down and she can't sleep (UGH). And I am realizing what a terrible idea all of this was - now all I have to do is convince THEM of that and I can take them home. But they are insisting they want to stay. And given the cause I was trying to be sympathetic to their interest.
BUT, one way or another, we were going home.
What really amazed me about this whole experience was the surprising self-awareness I saw in my little 7-year-old diabetic. I mean, I am not talking about her recognition of the fact that she was low. I am talking about her concern for others. I am talking about her concern for herself and her health.
When I left the house early that morning and later when my husband dropped them off, I never expected they would be interested in spending the night so I was in no way prepared for them to sleep. I had no blankets or chairs for them to sleep. We had an invite from their friends to sleep in the "kids tent" a few tents over which our Type Awesome was more than willing to do, but my T1D was reluctant. I could see it in her face. And I knew exactly why. The thought? "Who would hear my CGM if they are all sleeping? Who will tell my Mommy if I go low or high when I am sleeping?" and so she said she wanted to sleep in our tent. I had one chair that I was planning to sleep on and I offered it to her. But she kept going lower and lower and that is when I pulled the plug and packed up our stuff and said "time to go!"
I couldn't just take her home and drop her off because again I saw concern in her face. She knows that I am the one that wakes at the CGM alarm. I am the one that monitors her BG numbers overnight. My husband is a pretty heavy sleeper and she knows it and I was surprised at her awareness and concern for herself as she is also a heavy sleeper. She will not hear the alarm and wake up if it goes off in the night. That is MY job. One I am more than happy to take on.
So, for the first time in 6 years, I didn't stay the full 24-hours of the Relay For Life but the priority was her health. I brought her home and they showered and got into bed and it took quite some time to get that number up and YIKES then we rebounded with a vengance at about 5am.
You know, I knew I was "jinxing" myself when I wrote that blog about having a GREAT A1C...