Twins Always Take Care of Each Other!

Wednesday, September 11, 2013

Houston...We Have a Problem!

Well, I suppose I should have paid more attention to that warning! You know the one about the CGM (continuous blood glucose monitor) transmitter battery only lasting approximately six months. I had this nagging feeling that I should have been taking action on this but when I called the medical supply company, the rep actually talked me out of ordering it before the battery took a dive. She said why use it up before you have to?? And I figured - geez, that must be what everyone else is doing if that was what she was recommending so I let it ride...

Big mistake. And, you know, it was one of those mistakes that I really should have seen coming. It is common sense. But I was busy that day and I didn't give it much thought after that. Really. The life of a T1D parent is filled with enough to worry about, this was the one thing I turned my back on and BOOM! It blew up in my face... TODAY!

Yep! There it is! In all of it's glory! The transmitter stopped transmitting this afternoon and for the first time in quite some time I feel scared to go to sleep tonight. My little D-girl is surprisingly upset about it as well. Although I am sure she will enjoy the reprieve from wearing the sensor on her belly for a few days until we get the insurance authorization and the transmitter ships to us, I overheard her talking to her sister about being upset that there will be no CGM for a few days.

I say scared to go to sleep tonight because for anyone who might read this that is not the parent of a T1D child. Know this, blood sugar levels spike and drop throughout the day and night with or withOUT reason, with and withOUT warning (unless, of course, you have a CGM, which will give you a warning when those highs and lows are coming). So, for a T1D parent, and I am guessing T1D adults, nighttime is a scary time. You go to sleep and have to take a leap of faith that all will be well in the morning. All will be well. Know that I am using the kindest words. This is the most extreme fear that T1D parents have and it is very real. Scary stuff happens and can happen. And as a parent to think it could happen while you are sleeping?! Talk about a sense of failure to protect your child. And this happens EVERY-SINGLE-NIGHT in the life of a D-parent. Before we got the CGM, do you want to know what the first thing I did in the morning was? Immediately walk to her room and touched the inside of her palm to make her move to make sure she was responsive, all the while holding my breath. That was even before I could test her blood sugar levels. THAT is why I am constantly talking about how much we love the CGM and why I hold that little device in such high regard. It alarms when she goes high or low. It sits on my night stand like a little night sentry watching over her and keeping her safe.

BIG FAIL ON THE PART OF THE D-MOMMY! What was I thinking? I should not have let the medical supply company rep talk me out of simply ordering the replacement at the 6 month mark and having it on hand for when the first battery died.

So, I don't anticipate sleeping much over the next few days. I am back to fearing the worst in the overnight hours. You really come to rely on this amazing piece of technology and it offers such comfort and security. It will be quite a hardship to go without for the next few days.

Learn from my mistakes everyone, be prepared! Always! Think several steps ahead and don't let your guard down for a moment! And yes, I realize it is not the end of the world, but when living with a type 1 diabetic child sometimes it can be such a challenging lifestyle and once you find your "groove" it can be a bit unnerving when something comes along to knock down your house of cards, just sayin'...

Thanks for listening and please consider sharing! I look at this as a "teachable moment" so hopefully someone else can learn from what I did wrong J