-How to count carbs (and make accommodations for fat content)
-How to live on little to no sleep on a regular basis
-How to guess the carb content in the food that doesn't provide you with the carb content (UGH - no matter how many years you do this, it never gets easier in my opinion!)
-How to appreciate health and not take it for granted
-How to negotiate the health care and insurance system
...and so on.
What makes it difficult is the fact that no matter how much you know, no matter how much you "do it right," there are still times when things go wrong.
Let me first say that right now I am choosing to write because I could not be more thankful for a CGM (continuous blood glucose monitor) reading that looks like this:
But I could tell you that everything has been going well and I am an EXPERT and I deserve a big pat on the back. BUT, if I want to give you an honest glimpse into what life is really like in a type 1 diabetic household I have to show you the good and the bad. Well, the bad looks like this:
This is the exact same time on the CGM - just extended out to the 24-hour view. Not so pretty, is it? Fighting a lot of highs - then lows - then highs - then lows. See that crazy nose dive in there around 6am? That one, though was my fault. Here is where I tell you about the "RAGE BOLUS." That is where a type 1 diabetic (or the parent of one) is fighting high after high after high and no matter how much insulin you dump on that high the number just doesn't seem to budge. Like I might as well be dosing water for how much good it was doing. So, with the frustration of continuous highs and the fog of a brain on no sleep I dumped a bit too much insulin and BAM! Well, that blood sugar finally came down alright!
Now, we have been seeing this roller coaster for a couple of days now. Totally unexplained. And knowing that the problem is not with our insulin pump settings, I had tried other corrections - changing out her pod (insulin pump site). Made slight modifications to snacks to see if there was just a problem with fatty snacks before bedtime (such as ice cream). But nope, we were still seeing these issues. She has had a bit of a sinus issue this week but a minor cold normally will not have an impact like this on her blood sugar numbers.
So, this morning we changed out her pod - again - this time with a brand new bottle of insulin. That the first picture is the view of what today looked like (since breakfast). So far, so good! I don't want to jinx it because I SWEAR sometimes that really does seem to make a difference! I am really hoping that it was the bottle of insulin because I know I could really use some sleep again sometime soon...and I know my D-girl's fingers could use a break from all of this testing!
Chances are I may not write again before the holidays so if I don't, please have a happy and safe holiday, from our family to yours!